Day 4 - How have your friends and family reacted to it?
Luckily, my family never stopped believing me during the months of unexplained illness, no matter what my doctors said. That was integral, I think. It helped me to believe MYSELF. My family has been very understanding and sympathetic. My friends have also, even though I know there is a lot that they don’t understand. They continue to demonstrate to me that they are great people who care about me a lot and just want to help me feel better in any way that they can.
Wow, that’s so great! Good for you! Glad you feel better. Maybe anyone who is searching for an option should discuss this with their doc! :)
Haha! Yeah I know, I get it all the time from friends and fam! I know they’re just trying to help but it can be rather discouraging. Just let me eat, I don’t need commentary! :D
If you have chronic illness/pain and an eating disorder (whether recovered or not) would you please reblog this or send me a message in my ask? I need to know I’m not alone. I need to know life is worth living. Because right now, I’m not so sure.
I don’t have an ED but I have chronic illness/pain! You are *NOT* alone! And life IS worth living. <3 Hang in there! You are here for a reason! And I’m sending you lots of love and light. :)
I had a feeding tube for a month during the onset of the illness, back when they didn’t know what it was. I can tolerate food these days, I just have to be mindful. And it can cause pain and nausea but it’s way better than it used to be and at least I’m on medication now.
I don’t know a lot about it, honestly. Sorry if that’s unhelpful. I’ve read a few accounts of others’ experiences with it and some success stories, but I’ve never gotten to such a severe point with my illness that it’s been seriously considered for me.
Day 3 - How did you get a diagnosis?
How do I describe this succinctly? Well. It took 10 months of tests. Unfortunately, in many cases, gastroparesis is a diagnosis that only comes along after a billion other things are ruled out. I had to be tested for just about anything else it could have been before GP was considered. Also, my first doctor was kind of a jerk and didn’t do much for me - he seemed convinced that I was insane, that I was doing all of this for attention, or that I had an eating disorder and I was saying that I hurt and felt sick so that I wouldn’t have to eat. This was despite evidence of delayed emptying and despite everything I was telling him. Sadly, it took only one appointment with a new gastroenterologist to determine that I needed a solid gastric emptying study and this new doctor believed me straightaway - and found that I had chronic delayed gastric emptying, gastroparesis.