Just a Girl with GP
Description
My name is Kelsey and I live in Ohio. This blog is meant to be a documentation of my life with moderate idiopathic gastroparesis - a stomach condition I was finally diagnosed with in January of 2012, after 10 months of being chronically ill. Not only is gastroparesis an "invisible illness," but so little is understood about the disorder, especially by the general public. So many people out there don't even know what gastroparesis is, not to mention what it's like living with gastroparesis every day. Well, this blog is my attempt to archive my own experience, to raise awareness, to reach out and to do my part to help people understand.Links
30 Day Chronic Illness Challenge - Day 4…
Day 4 - How have your friends and family reacted to it?
Luckily, my family never stopped believing me during the months of unexplained illness, no matter what my doctors said. That was integral, I think. It helped me to believe MYSELF. My family has been very understanding and sympathetic. My friends have also, even though I know there is a lot that they don’t understand. They continue to demonstrate to me that they are great people who care about me a lot and just want to help me feel better in any way that they can.
Hello, I would just like to share with anyone whos considering domperidone for gastroparesis, that it completely changed my life ! I barely have any discomfort anymore and I have had 0 side effects. I cannot believe this is not available in the U.S.
Wow, that’s so great! Good for you! Glad you feel better. Maybe anyone who is searching for an option should discuss this with their doc! :)
I liked what you posted the other day on things not to say while I'm eating because my parent's say that stuff a lot and it annoys the shit out of me lol
Haha! Yeah I know, I get it all the time from friends and fam! I know they’re just trying to help but it can be rather discouraging. Just let me eat, I don’t need commentary! :D
hannah-the-ana
Illness/pain and EDs.
If you have chronic illness/pain and an eating disorder (whether recovered or not) would you please reblog this or send me a message in my ask? I need to know I’m not alone. I need to know life is worth living. Because right now, I’m not so sure.
I don’t have an ED but I have chronic illness/pain! You are *NOT* alone! And life IS worth living. <3 Hang in there! You are here for a reason! And I’m sending you lots of love and light. :)
(via artsythin)
(Source: ildlfe, via chronicallyoptimistic)
Those magical days when you wake up feeling amazing! :)
Edit: So much so, that you take a goofy thumbs-up picture for your blog and almost instantly regret it, haha…
I was just asking in case you needed one but hadn't been told about it. I've just had one fitted. Do you have a feeding tube or are you able to tolerate food? :)
I had a feeding tube for a month during the onset of the illness, back when they didn’t know what it was. I can tolerate food these days, I just have to be mindful. And it can cause pain and nausea but it’s way better than it used to be and at least I’m on medication now.
Do you know about the gastric pacemaker?
I don’t know a lot about it, honestly. Sorry if that’s unhelpful. I’ve read a few accounts of others’ experiences with it and some success stories, but I’ve never gotten to such a severe point with my illness that it’s been seriously considered for me.
30 Day Chronic Illness Challenge: Day 3…
Day 3 - How did you get a diagnosis?
How do I describe this succinctly? Well. It took 10 months of tests. Unfortunately, in many cases, gastroparesis is a diagnosis that only comes along after a billion other things are ruled out. I had to be tested for just about anything else it could have been before GP was considered. Also, my first doctor was kind of a jerk and didn’t do much for me - he seemed convinced that I was insane, that I was doing all of this for attention, or that I had an eating disorder and I was saying that I hurt and felt sick so that I wouldn’t have to eat. This was despite evidence of delayed emptying and despite everything I was telling him. Sadly, it took only one appointment with a new gastroenterologist to determine that I needed a solid gastric emptying study and this new doctor believed me straightaway - and found that I had chronic delayed gastric emptying, gastroparesis.
